The Maholian Way - Part Four: Social inclusion and connection
As in other areas of social policy, each person with a serious disability has a care coordinator whose job it is to ensure that all the services work well together in the interests of the client. When these services do work well together it usually means that more institutionalised, more expensive, less satisfactory care can be avoided. But it would be wrong to see the lives of people with serious disabilities as being dominated by professional services. The aim of these services is to allow them and their family carers to be, as much as possible, just ‘regular folks’ in the community. Often the disabled or their families have come up with very creative ideas to deal with their situations.
For example, eight couples or sole parents who were caring for adult children with profound intellectual (and sometimes physical) disabilities got together and set up a co-housing cooperative. They had purpose-built for them a set of apartments that provided self-contained homes for each family, as well as two common living areas – one of which was specifically for the disabled offspring and their carers. Parents were rostered to care for their own and others’ children in this common area, and this arrangement gave parents a lot more time free of caring responsibilities – time to work, pursue other interests, be with other offspring and even have weekends and holidays away. Parents were also able to give each other vital moral support and advice. On top of the rostering arrangement, they still had access to various kinds of outside help.
Then there was a group of older women and men who called themselves with more than a touch of irony the NQP (not quite perfect) Production Brigade. Most of these folk had significant disabilities, but despite being wheelchair bound, partially blind, deaf or affected by arthritis or emphysema, they would get together in an old church hall on weekdays and tackle fundraising projects for a range of causes – making jams and pickles, knitting, crocheting, doing paintings to be printed as greeting cards, making stuffed toys and all manner of other things that could be sold. Tools, equipment and kitchen appliances were adapted to their capacities, everyone had specific tasks that they could manage, and they all enjoyed themselves hugely in the process.
Connecting across the generations
One of the
The
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